Data Collection


The initiative aims to make data work better for users. We need to collect data on childhood cancer that is useful for a wide variety of users, including clinicians, researchers and patients and their families.


Answer one or more of the following questions in your response:

  • What would we need to do to collect the most informative datasets possible?
    • What data types do we need to consider?
    • What are the minimal molecular and clinical data elements needed for a broadly used dataset?
    • What tissue sources should be considered?