Data Infrastructure

The initiative aims to build a connected data infrastructure to enable sharing of childhood cancer data from multiple sources. Many factors need to be considered before developing the data infrastructure, starting with a review of existing data repositories and the development of policies associated with data access, long-term patient follow-up, collecting and storing sensitive patient data, and returning research results to patients.

Answer one or more of the following questions in your response:

  • What gaps are there in existing childhood cancer data repositories?
  • What are the opportunities for linking existing and new data repositories?