Expanding Clinical Trials

Patient Centered Approach to Clinical Trials

The needs, preferences, and values of cancer patients should be incorporated into clinical research studies. This approach could facilitate adherence of currently enrolled clinical trial patients as well as recruitment of new enrollees.

What is the research problem

Patient needs, preferences, and values are not consistently assessed or considered as part of clinical research studies. There is also limited follow-up with patient participants regarding study results.

How will your solution make a difference

Patients will be engaged as active partners, not passive participants. Better inclusion and understanding of their role might facilitate adherence of currently enrolled patients as well as recruitment of new enrollees.

What is your proposed solution

Develop communication protocols informed by patients, caregivers, and families. Provide mechanisms for patients to communicate personal goals related to clinical trial in which they have been enrolled. Allow for the meaningful incorporation of patient-reported outcomes into findings. Report back to patients and families in a timely manner, before public dissemination. Request feedback to improve process.

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Idea No. 783