There should be stringent standards in place, starting with data creation, to ensure that only high quality data (physical and digital) is submitted and stored. The Children's Brain Tumor Tissue Consortium has developed a set of data standards for each type of data to shepherd the collection and submission process so that researchers know they can count on a reliable resource, which speeds the research process. Data should be highly annotated and include longitudinal clinical data, genomic data, imaging and histology data.
Idea No. 951