Sharing data among investigators and institutions is essential for building on the cancer research progress made so far, but many barriers to effective sharing exist. Barriers can arise from technological or infrastructural limitations (data are stored on different systems or are generated by different methods, making them incompatible). Poor access or participation can also be a barrier (some data may not be shared, and some researchers may not be able to access or analyze even data that are publicly available).
The submission period for Enhanced Data Sharing ideas ended on July 1. However, we encourage you to sign up for regular e-mail updates about the National Cancer Moonshot Initiative at the Cancer Moonshot Milestones web page.
Oncologic literature should be organized, reviewed, and rated through a web-based application, making important emerging data more widely available and impactful. A rating system would help clinicians prioritize data consumption and implementation.
Diagnostics tools are effective ways to identify patients for particular therapies. Unfortunately patients who are screened for a particular trial should be provided information on all trials which they may be eligable for.
Improving tools to store and mine data is imperative to continue progress.
There is an unmet need for a universal database to access data and query tools.
ARR Recommendation
Funding for data sharing is small when compared to the overall funding budget and considering its necessity and impact to cancer care.The little funding that is rewarded has not led to extensibility for real world use and expertise gaps still remain.
To ensure that patients and clinicians are able to make fully informed decisions about pharmaceutical agents, biological products, and medical devices tested through clinical trial research, an era of open science through data sharing is necessary.
We propose usage of our cloud-based deep learning platform to aggregate images from around the globe and then automate and standardize segmentation and measurement of these images
Before we know what data to share and how, we have to know what has already been generated or is in the process of being so. Data management plans help with that, but they would be more effective if they were versioned, machine actionable and public.
Modern presentation of patient condition including physician impression and patient reported measures will both quantify and communicate patient status between care providers supporting records for data driven decision support.
Acknowledge patients are owners of their own bodily specimens, allow them to access those specimens as needed for testing and diagnosis, and let them decide with whom to share their specimens
To accelerate cancer research, we need to break down data silos and permit open access to data. Instead of rewarding researchers for being first to gather AND report on data, reward them for generating high-quality data, as well as analyzing data
The CDC's Inside Knowledge Campaign is a very detailed awareness program helping women, physicians and caregivers to be more aware of the most common symptoms of gynecological cancers. An early detection software program will tag and link symptoms.