With a multi-language web platform freely available to the global scientific community, researchers can adopt open therapeutic technologies and conduct the entire journal manuscript development process intertwined with a pre-peer review process.
Enhanced Data Sharing
Cancer Research Ideas - Enhanced Data Sharing (Archived)
Sharing data among investigators and institutions is essential for building on the cancer research progress made so far, but many barriers to effective sharing exist. Barriers can arise from technological or infrastructural limitations (data are stored on different systems or are generated by different methods, making them incompatible). Poor access or participation can also be a barrier (some data may not be shared, and some researchers may not be able to access or analyze even data that are publicly available).
The submission period for Enhanced Data Sharing ideas ended on July 1. However, we encourage you to sign up for regular e-mail updates about the National Cancer Moonshot Initiative at the Cancer Moonshot Milestones web page.
Widespread funded testing of genomics, proteomics, and other omics on every patient's tumor and blood with associated clinical outcomes. Patients own the data and choose to make it available in a national database accessible to all.
NIH should fund A.) creation of a platform upon which an open-source information model and open-source analytic tools that can be used and enhanced by stakeholders, and B.) the initial development and deployment of this platform.
As a ALL patient in 2010 I was for 28 days in Duke, a teaching hospital, and never interviewed for life events, possible exposures or anything else. This seems to be a waste of a good opportunity for gathering vital research material.
There should be NO BARRIER to finding cures for cancers. So many lives await swift remedies and cures. Agencies across the nation should share in a spirit of cooperation and urgency in their research and remove all impediments at once.
Require that the results of any federally-funded cancer research be available to the public for free at publication, not 12 months later. That year of delay is one we can't afford.
Many publications languish behind paywalls, others have no associated data, and still others say they used custom codes for analysis. All of these are impediments to research. There availability needs to be part of funder mandates.
An inexpensive service that delivers latest life impacting knowledge directly to patient family
Create a registry of ALL cancer patients, the diagnostics they have, the treatments they do and the outcome.
Just like the Prostate Cancer Foundation did, the Moonshot should make it mandatory that full results of all research it funds be made public in a timely manner. .
Data sharing is one of the keys to the moonshot initiative as I see it: an ambitious ground-breaking project with knowledge and action in sight rather then profitability.
We need to discuss how cancer research data can and should be standardized.