Improve Clinical Trials Information – Patients, Caregivers, Advocates

Improve Clinical Trials Information – Patients, Caregivers, Advocates (Archived)

Have you been frustrated with how difficult it is to find clinical trials information? Do you have an idea that would help patients have a more informed discussion with their doctor about clinical trials? Submit your ideas or comment on ideas from others.

Improve Clinical Trials Information – Patients, Caregivers, Advocates

Abolish facility fees at NCI cancer centers to improve access

My wife prefers to get care at NCI centers where most trials are offered. Emory charges facility fees ($700) for outpatient visits and labs not paid by insurance. Fees amount to tax on NIH-paid trials & must be stopped to maximize access for all.

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

finding a new possible cancer

My new MRI of my spine states I may have a possible malignancy due to diffuse low signal intensity on my T 1. Do you have anything that is geared to this? I am a veteran and am 100 % disabled in the VA. carltonbuscemi@hotmail.comt 617-785-8873 .

Submitted by (@carltonbuscemi)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Clinical Trials Navigator | Outreach and Marketing to Doctors

M3 USA can partner with NIH & the administration to help make clinical trials info readily accessible to patients & physicians. Also, M3 can help w/ market research & outreach to physicians re: clinical trials and gen info on the cancer initiative.

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Better visual information - short animated films

Understanding the expectations of clinical trials may be a key to improve the participation rate. A key to understanding the medical background of clinical trials can be provided by visual animations which show the mechanisms of the new agent.

Submitted by (@walter)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Clinical Trial Administration

Since most income of healthcare centers comes from Medicare/caid patients, it should be mandated that they need to accrue a certain percentage of patients on clinical trials. Institutions like the FDA and NIH should also help in administering this.

Submitted by (@devacharya)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Managing Cancer Research Study Information

This proposal suggest a method to manage some clinical studies as though they were FDA regulated Clinical Trials. This. would add Documentation which is needed for Sharing information and also to increase Quality.

Submitted by (@rlchambe)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

The community pharmacist

The community pharmacist has an unique relationship with patients. It is this relationship that allows the RPH to be more involved with the lives of their patients. This trust all as them, at times, more of an ability to discuss trials with the pt.

Submitted by (@marc.v.silbergleit)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Interactive Timeline

Interactive timeline (hyperlinking relevant publications, white papers, FDA drug use/limitations etc.) that describes the history that led to clinical trial and/or clinical trial design. Ultimately a one-stop shop for patients to health professionals

Submitted by (@jphillipsrohan)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Low Dose Naltexone treatment

Zou het geen goed idee zijn een onderzoek te starten naar het gebruik en nut van LDN bij kanker? LDN wordt ook gebruikt bij behandeling van MS

Submitted by (@nandanico)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

notification system for clinical trials- an optional registry

Meaningful use or legal requirement of doctors/hospitals & tracked by USgov. Patients must be offered the option to enter the notification registry. Mailers w/ info on current clinical trials pertaining to their type of cancer. Opt out phone # too.

Submitted by (@hjtibollo)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Educating Medical Students to Help Further Clinical Trials

There should be a clinical trials course for one semester for medical students. Students can learn about the fundamental of Human Subject Research and clinical trials. This will allow future doctors to understand clinical trials and utilize them.

Submitted by (@gangurhar)

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Improve Clinical Trials Information – Patients, Caregivers, Advocates

Spanish

Make sure cooperative groups are required to have Spanish translations of consents available at the same time as English. Also, clinical trials educational videos available in Spanish.

Submitted by (@lmsimon)

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