Skip to main content Skip to sidebar
IDEASCALE
  • Register
  • Log in
  • Submission Closed
Register To Contribute

Please create an account to cast your vote and join our community!

Create Account
Already have an account? Log in
Toggle navigation
  • About
Submission Closed
  • Improve Clinical Trials Information – Patients, Caregivers, Advocates
    • About Campaign
    • Sort Recent
      • Sort
      • Recent Ideas (current)
      • Tags Ideas
    • Stage All
      Improve Clinical Trials Information – Patients, Caregivers, Advocates
      • About Campaign
      • Recent Ideas (current)
      • Tags Ideas
      Submitted by Community member kudos icon + 30/Aug/16 1:22 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Abolish facility fees at NCI cancer centers to improve access

      My wife prefers to get care at NCI centers where most trials are offered. Emory charges facility fees ($700) for outpatient visits and labs not paid by insurance. Fees amount to tax on NIH-paid trials & must be stopped to maximize access for all.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Carlton Buscemi (@carltonbuscemi) kudos icon + 27/Aug/16 12:34 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      finding a new possible cancer

      My new MRI of my spine states I may have a possible malignancy due to diffuse low signal intensity on my T 1. Do you have anything that is geared to this? I am a veteran and am 100 % disabled in the VA. carltonbuscemi@hotmail.comt 617-785-8873 .

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Community member kudos icon + 26/Aug/16 5:30 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Clinical Trials Navigator | Outreach and Marketing to Doctors

      M3 USA can partner with NIH & the administration to help make clinical trials info readily accessible to patients & physicians. Also, M3 can help w/ market research & outreach to physicians re: clinical trials and gen info on the cancer initiative.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Walter (@walter) kudos icon + 24/Aug/16 6:06 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Better visual information - short animated films

      Understanding the expectations of clinical trials may be a key to improve the participation rate. A key to understanding the medical background of clinical trials can be provided by visual animations which show the mechanisms of the new agent.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Dev Acharya (@devacharya) kudos icon + 24/Aug/16 2:06 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Clinical Trial Administration

      Since most income of healthcare centers comes from Medicare/caid patients, it should be mandated that they need to accrue a certain percentage of patients on clinical trials. Institutions like the FDA and NIH should also help in administering this.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by rlchambe (@rlchambe) kudos icon + 24/Aug/16 8:22 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Managing Cancer Research Study Information

      This proposal suggest a method to manage some clinical studies as though they were FDA regulated Clinical Trials. This. would add Documentation which is needed for Sharing information and also to increase Quality.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by marc.v.silbergleit (@marc.v.silbergleit) kudos icon + 18/Aug/16 11:17 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      The community pharmacist

      The community pharmacist has an unique relationship with patients. It is this relationship that allows the RPH to be more involved with the lives of their patients. This trust all as them, at times, more of an ability to discuss trials with the pt.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by jphillipsrohan (@jphillipsrohan) kudos icon + 12/Aug/16 1:56 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Interactive Timeline

      Interactive timeline (hyperlinking relevant publications, white papers, FDA drug use/limitations etc.) that describes the history that led to clinical trial and/or clinical trial design. Ultimately a one-stop shop for patients to health professionals

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by nandanico (@nandanico) kudos icon + 11/Aug/16 9:06 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Low Dose Naltexone treatment

      Zou het geen goed idee zijn een onderzoek te starten naar het gebruik en nut van LDN bij kanker? LDN wordt ook gebruikt bij behandeling van MS

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by htibollo (@hjtibollo) kudos icon + 11/Aug/16 12:55 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      notification system for clinical trials- an optional registry

      Meaningful use or legal requirement of doctors/hospitals & tracked by USgov. Patients must be offered the option to enter the notification registry. Mailers w/ info on current clinical trials pertaining to their type of cancer. Opt out phone # too.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Harini Gangur (@gangurhar) kudos icon + 09/Aug/16 12:45 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Educating Medical Students to Help Further Clinical Trials

      There should be a clinical trials course for one semester for medical students. Students can learn about the fundamental of Human Subject Research and clinical trials. This will allow future doctors to understand clinical trials and utilize them.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by Lindsey Simon (@lmsimon) kudos icon + 05/Aug/16 12:09 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Spanish

      Make sure cooperative groups are required to have Spanish translations of consents available at the same time as English. Also, clinical trials educational videos available in Spanish.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by USB4076 (@markanderson) kudos icon + 03/Aug/16 9:28 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Communication gaps between Patients, Caregivers, and Advocates

      Jeff Goldfarb, in an Applied Clinical Trials article, described the success forces for recruiting patients. Attached is a summary of an eye opening, data supported, and compelling piece of research that disrupts your thinking.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by higinbok kudos icon + 02/Aug/16 2:51 PM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Public Service Ad to run in Dr. offices

      Many doctor offices have TV's in their waiting rooms and they often run health related messages, trivia and information. NCI could develop general or cancer-specific clinical trial ads for subscription for those TVs.

      Voting

      0 votes
      • Ideate
      Ideate
      Submitted by USB4076 (@markanderson) kudos icon + 02/Aug/16 10:11 AM

      Improve Clinical Trials Information – Patients, Caregivers, Advocates

      Build an online community of patients, caregivers, and advocates

      Community building software platforms are mature, readily available, and can facilitate content moderation, discussions, forums, ideation, crowdsourcing, gamification to bring together diverse groups of people.

      Voting

      0 votes
      • Ideate
      Ideate
      Load More Ideas
      Advanced Search

      Contact [-]

      Quick Links
      • Learn more about the Childhood Cancer Data Initiative
      • Childhood Cancer Data Initiative (CCDI) Symposium
      • National Cancer Institute Website
      • Contact Us

      Active Campaigns [-]

      Campaign Activity [-]

      • 32 ideas posted
      • 0 idea views
      • 22 comments
      • 0 votes

      Social Web [-]

      • Facebook
      • Twitter
      • LinkedIn

      Subscribe [-]

      • New Ideas RSS Feed
      • Top Ideas RSS Feed
      • New Comments RSS Feed

      Archived Campaigns [+]

      Powered By

      Powered by IdeaScale
      Copyright © 2021 IdeaScale Feedback Software | IdeaScale End User Terms
      National Cancer Institute
      • About
      • Terms of Use
      • Accessibility
      • Privacy Issues
      • Archive of Previous Campaigns
      • National Institutes of Health
      • U.S. Department of Health & Human Services
      • USA.gov
      | Widget | IdeaScale Privacy Policy | IdeaScale Cookie Policy
      Use arrow key to choose the Emoji. Press Esc to Close Emoji Picker. ×

      Search Results

      No emoji found

      IdeaScale Emoji