Jeff Goldfarb, in an Applied Clinical Trials article, described the success forces for recruiting patients. Attached is a summary of an eye opening, data supported, and compelling piece of research that disrupts your thinking.
Improve Clinical Trials Information – Patients, Caregivers, Advocates
Improve Clinical Trials Information – Patients, Caregivers, Advocates (Archived)
Have you been frustrated with how difficult it is to find clinical trials information? Do you have an idea that would help patients have a more informed discussion with their doctor about clinical trials? Submit your ideas or comment on ideas from others.
Many doctor offices have TV's in their waiting rooms and they often run health related messages, trivia and information. NCI could develop general or cancer-specific clinical trial ads for subscription for those TVs.
Community building software platforms are mature, readily available, and can facilitate content moderation, discussions, forums, ideation, crowdsourcing, gamification to bring together diverse groups of people.
A winning strategy for communications is like a three legged stool. It starts with being original (creating shareable content), being liked (up-voted in the social space), and being found (getting on the first page of Google).
The catalog industry saved itself by creating a data co-op that dropped the cost of a “name” by 90%. If the pharma industry created a co-op of “patient names” by using a neutral, third-party vendor, it could solve its patient recruitment problem.
Patients and care providers should be aware of the mandated clinicaltrials.gov website which SHOULD list every Phase 1-2-3-4 clinical trial in a layperson format citing eligibility criteria, hospital location, and enrollment status.
Pharma/biotech companies make BIG money thanks to clinical trial volunteers. Have them step up and cover additional costs for side effects, paying to get volunteers to study sites, hiring people to help volunteers manage financial concerns etc.
OUR SON AT AGE 45 HAD A DELAYED DIAGNOSIS OF COLON CANCER AND WAITED 8 MONTHS FOR HELP FROM HIS FAMILY DR WHICH HE NEVER RECEIVED. WE NEED DOCTORS TO BE MORE AWARE OF EARLY DETECTION. HE IS NOW UNABLE TO HOLD DOWN A JOB BECAUSE OF DRASTIC MEASURES .
In healthcare we focus singularly And on the past.We need to bring in people from non healthcare disciplines for new strategies. We need to surround the cancer, eliminate its defenses then let the "killers" in the door to finish the job.
Organizations that run trials often won't give information on trials to patients. Community physicians are not interested in trials so won't call. We need a directory of trials by indications & locations for patient access.
We have problems with MAP, Commercial Plans, and coverage for clinical trials. Patient accrual is suffering. Payers are uneducated. We are challenged with the coverage analysis process and Medicare's reactions. United we could do something with it.
Translation of articles and creation reviews for cancer prevention.
Scientific facts about nutrition. Official research the relationship of nutrition and health.