Research Area: Cancer Immunology & Prevention

Participation

Accelerate trials of car T cell immuotherapy for prostate cancer

Submitted by (@morrow4)

What is the research problem :

No trials currently for prostate cancer in car T cell immuotherapy.

How will your solution make a difference :

It has shown a difference for other cancer patients in the use of this such as melanoma. Terminal prostate cancer patients such as myself at the end of standarized treatments have no choices left.

What is your proposed solution :

Provide funding for this as City of Hope was ready to go forward with this, but lacked necessary funding and every where you look as a potential groundbreaking treatment car T cell immuotherapy is mentioned for advanced prostate cancer.

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Research Area: Improve Clinical Trials Information – Patients, Caregivers, Advocates

Abolish facility fees at NCI cancer centers to improve access

My wife prefers to get care at NCI centers where most trials are offered. Emory charges facility fees ($700) for outpatient visits and labs not paid by insurance. Fees amount to tax on NIH-paid trials & must be stopped to maximize access for all.

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Research Area: Improve Clinical Trials Information – Health Professionals

Update Drugs and Cancer associated with a Clinical Trials

Drugs/Cancer associated with a clinical trial are crucial entities to recommend trials to patients.Sometimes these are updated during couse of the trial. Eg:NCT01522989 was initially designed for Colorectal Cancer but now covers Advanced Solid tumor

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Research Area: Improve Clinical Trials Information – Health Professionals

Annotation of Clinical Trials with Biomarkers

NGS analysis enables to identify genes with mutations that are causative for the cancer in the patient. Annotation of clinical trials with biomarkers will enable to selectively filter trials for the patient.

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Research Area: Improve Clinical Trials Information – Health Professionals

Android and iPhone Apps

You could create Android and iPhone apps that contain this information. You could also advertise on there as well (although ads are annoying).

Submitted by (@mroneal)

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Research Area: Improve Clinical Trials Information – Health Professionals

CenterWatch

CenterWatch has a database:

https://www.centerwatch.com/clinical-trials/

 

From their site: Access the largest online database of industry-sponsored clinical trials actively seeking study volunteers.

Submitted by (@mroneal)

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Research Area: Improve Clinical Trials Information – Health Professionals

Center for Information and Study on Clinical Research

A non-profit organization dedicated to engaging the public and patients as partners in the clinical research process: https://www.ciscrp.org/about-us/what-we-do/

Submitted by (@mroneal)

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Research Area: Improve Clinical Trials Information – Health Professionals

Building The World Wide Cancer Trial Grid

Most cancer physicians are using the Internet to obtain information about their options. A concerted approach utilizing grid computing, data mining, and machine learning could lead to a new revolution in utilizing clinical trial information.

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Research Area: Improve Clinical Trials Information – Patients, Caregivers, Advocates

finding a new possible cancer

My new MRI of my spine states I may have a possible malignancy due to diffuse low signal intensity on my T 1. Do you have anything that is geared to this? I am a veteran and am 100 % disabled in the VA. carltonbuscemi@hotmail.comt 617-785-8873 .

Submitted by (@carltonbuscemi)

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Research Area: Improve Clinical Trials Information – Patients, Caregivers, Advocates

Clinical Trials Navigator | Outreach and Marketing to Doctors

M3 USA can partner with NIH & the administration to help make clinical trials info readily accessible to patients & physicians. Also, M3 can help w/ market research & outreach to physicians re: clinical trials and gen info on the cancer initiative.

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Research Area: Improve Clinical Trials Information – Health Professionals

Clinical Trials Navigator | Marketing and Outreach to Doctors

M3 USA maintains a free, user-friendly clinical trials navigator for both clinicians & patients. The searchable, sortable database updates daily, & provides access to thousands of clinical trials in all specialties, the largest of which is oncology.

Submitted by (@m3usa.mdlinx)

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Research Area: Improve Clinical Trials Information – Patients, Caregivers, Advocates

Better visual information - short animated films

Understanding the expectations of clinical trials may be a key to improve the participation rate. A key to understanding the medical background of clinical trials can be provided by visual animations which show the mechanisms of the new agent.

Submitted by (@walter)

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