The catalog industry saved itself by creating a data co-op that dropped the cost of a “name” by 90%. If the pharma industry created a co-op of “patient names” by using a neutral, third-party vendor, it could solve its patient recruitment problem.
Improve Clinical Trials Information – Patients, Caregivers, Advocates
Improve Clinical Trials Information – Patients, Caregivers, Advocates (Archived)
Have you been frustrated with how difficult it is to find clinical trials information? Do you have an idea that would help patients have a more informed discussion with their doctor about clinical trials? Submit your ideas or comment on ideas from others.
A winning strategy for communications is like a three legged stool. It starts with being original (creating shareable content), being liked (up-voted in the social space), and being found (getting on the first page of Google).
Community building software platforms are mature, readily available, and can facilitate content moderation, discussions, forums, ideation, crowdsourcing, gamification to bring together diverse groups of people.
Many doctor offices have TV's in their waiting rooms and they often run health related messages, trivia and information. NCI could develop general or cancer-specific clinical trial ads for subscription for those TVs.
Jeff Goldfarb, in an Applied Clinical Trials article, described the success forces for recruiting patients. Attached is a summary of an eye opening, data supported, and compelling piece of research that disrupts your thinking.
Make sure cooperative groups are required to have Spanish translations of consents available at the same time as English. Also, clinical trials educational videos available in Spanish.
There should be a clinical trials course for one semester for medical students. Students can learn about the fundamental of Human Subject Research and clinical trials. This will allow future doctors to understand clinical trials and utilize them.
Meaningful use or legal requirement of doctors/hospitals & tracked by USgov. Patients must be offered the option to enter the notification registry. Mailers w/ info on current clinical trials pertaining to their type of cancer. Opt out phone # too.
Zou het geen goed idee zijn een onderzoek te starten naar het gebruik en nut van LDN bij kanker? LDN wordt ook gebruikt bij behandeling van MS
Interactive timeline (hyperlinking relevant publications, white papers, FDA drug use/limitations etc.) that describes the history that led to clinical trial and/or clinical trial design. Ultimately a one-stop shop for patients to health professionals
The community pharmacist has an unique relationship with patients. It is this relationship that allows the RPH to be more involved with the lives of their patients. This trust all as them, at times, more of an ability to discuss trials with the pt.
This proposal suggest a method to manage some clinical studies as though they were FDA regulated Clinical Trials. This. would add Documentation which is needed for Sharing information and also to increase Quality.
Since most income of healthcare centers comes from Medicare/caid patients, it should be mandated that they need to accrue a certain percentage of patients on clinical trials. Institutions like the FDA and NIH should also help in administering this.
Understanding the expectations of clinical trials may be a key to improve the participation rate. A key to understanding the medical background of clinical trials can be provided by visual animations which show the mechanisms of the new agent.
M3 USA can partner with NIH & the administration to help make clinical trials info readily accessible to patients & physicians. Also, M3 can help w/ market research & outreach to physicians re: clinical trials and gen info on the cancer initiative.